OUR VALUES

Creating a Public Conversation: We value speaking openly, honestly, and publicly about vulvovaginal pain in order to destigmatize these conditions. 

Systemic Change: We see underlying systemic problems in how healthcare systems view, understand, and treat chronic vulvovaginal and pelvic pain. Our work is directed at the root causes of diagnostic delay, ineffective treatment, and negative social attitudes towards these conditions. We want to see concrete and tangible change from private and public institutions that will improve people’s daily lives.

Destigmatization: We actively break the silence and secrecy that have accompanied these conditions for centuries. We believe that no one should live in shame because they have vulvovaginal pain. We are committed to shifting the narrative to make clear that vulvovaginal pain is worthy of care. We underscore the prevalence of these conditions as a way to destigmatize and build collective power. 

Scientific and Medical Knowledge: Our work is driven by and rooted in scientific and medical research. We are committed to educating ourselves about the latest research, clinical trials, and medical findings. We work in collaboration with researchers and medical professionals. 

Embodied Knowledge: We are experts in our own bodies and our own lived experiences. We honor the personal stories and experiences of people with chronic vulvovaginal and pelvic pain conditions. We know that patients are often more educated, knowledgeable, and well-versed in the issues contributing to misdiagnoses, ineffective treatment, and prolonged pain.

Racial and Economic Justice: We are committed to an anti-racist framework for every aspect of our campaigns and programs. We see how access to healthcare, insurance, and specialists is impacted by racism and classism. Healthcare is a human right. 

Disability Justice: We take care of ourselves and each other. We are dedicated to creating campaigns and programs that people living with chronic pain and chronic illness can actively participate in. 

Collective Responsibility: We build relationships and bring people together in a way that is both sustainable and has momentum. Our leadership is made up of those most impacted by these conditions.