OUR APPROACH

We believe that patients have the power to change how we’re treated, when we come together and organize. We work to halt systemic mistreatment and implement meaningful and tangible policy and practice change in how healthcare systems treat chronic vulvovaginal and pelvic pain. We focus on changes that will improve the daily lives of millions of people living with persistent vulvovaginal and pelvic pain. 

Vulvovaginal and pelvic pain conditions exist at the intersection of sexual and reproductive health, chronic illness, mental health, and disability justice, and we see our approach as building on decades of powerful patient activism. Just as breast cancer patients, AIDS activists, and pro-choice advocates destigmatized sexual and reproductive health and made it possible for people to talk about taboo health issues, so too will we normalize conversation around chronic vulvovaginal and pelvic pain.

Tight Lipped achieves this transformation through:

“I used to feel this really profound sadness every time I thought about my condition. I don't feel that brokenness anymore, if anything I feel this anger to dismantle all these systems.”

— Sophie Krueger